Tuesday, August 31, 2010

Intervention? Not Now.

With each passing day, I look at Caleb with total and complete awe. I remember all the time I spent in utter anguish after hearing the initial prognosis. I remember having such a difficult time imagining my life and the future of this child. I remember wondering if he would live or die and knowing that it was completely out of my hands. I remember Divine Mercy Sunday, when I gave it all to God and chose to have complete trust in His Divine plan.

I am so happy that I let the Lord in to my heart to take away the angst and fear and replace it with peace and joy. How many months would I have wasted on worry? Without a doubt, our lives were still thrown into complete upheaval, and even with the trust I had, it was a difficult time. The point is that I was still able to find comfort in God's will and let Him envelop me in His arms; bringing me hope. I want everyone to be able to experience the wonders that I have in the past few months. How blest I have been!

Caleb continues to be a challenge in his "clinginess" but life is so beautiful! I remember what could have been and I whole-heartedly accept the little extra I have to put into caring for my son. He is such a gift! He is starting to give me social smiles and make eye contact.

He had his physical and developmental therapy evaluations with the state's early intervention program today. Apparently, Caleb has increased muscle tone, which is common with neurologic disorders. It means that his muscles are unusually rigid and he seems strong for his age (but stronger than he should be, which isn't as good a thing as you would think.) Basically, if he's lying on his back and you pull him up by the arms, he keeps them slightly flexed when they should just flop straight out. Babies aren't supposed to be able to do that. It's not that he "can't" straighten his arms; it's just that the tension in the muscles is too tight.

Another thing the therapist noticed was that Caleb tends to tilt his head to the right and his gaze tends to be usually set to the left. Again, it's not that he "can't" tilt his head to the left or look to the right, it's that he has those preferences, which are unusual with most babies, but common with ones who have neurologic issues.

These three abnormalities aren't really serious and don't require any therapy at this time. The therapists will be re-evaluating Caleb in three months, but as for now, they are very pleased with his health. Neither therapist noticed any other strange behavior and they assured me that he is right where he should be with his milestones. It is truly amazing! God is protecting him and using him to show the world that He is there and He is listening when you pray!

No comments:

Post a Comment